Episode 78 Resources: Living with a Disability: Four People Share their Stories

Original Broadcast: March 4, 2020
Recording and Transcripts Episode 78: Living with a Disability: Four People Share their Stories
Link: adalive.org/episode78



  • Karen Hamilton, Coordinator of the NC ADA Network
    (an initiative of the North Carolina Council on Developmental Disabilities);
  • Jonathan Ellis
  • Jean Andersen
  • Lisa Byrd
  • Lorraine Woodward

North Carolina Council on Developmental Disabilities (NCCDD)
They improve the opportunities and lives of people with disabilities and their families through advocacy, capacity building and systems change.
800-357-6916 (v/tty)
919-527-6500 (v/tty)
Link: nccdd.org

Support these campaigns to raise awareness and promote inclusion of people with disabilities. Check out the resources, artwork, videos, toolkits, and more.  

Cerebral Palsy Resources

  • United Cerebral Palsy Association (UCPA)
    Serves individuals with cerebral palsy and other disabilities, their families and communities in the U.S. and Canada. UCP affiliates provide services and support in local communities, serving the unique needs of people with disabilities in their regions.
    Phone: (202) 776-0406
    Link: ucp.org
  • Easter Seals
    Easterseals offers hundreds of home and community-based services and supports to more than a million people and families living with a disability each year. They serve a network of 71 nationwide affiliates, plus four international partners in Australia, Mexico, Puerto Rico and Canada.
    Phone: 800-221-6827 (toll-free)
    Link: easterseals.com

Brain Injury Resources

  • Brain Injury Association of America
    Their nationwide network of chartered state affiliates provides direct support and advocacy for individuals living with brain injury, their friends and family, professionals and the general public.
    Helpline: 1-800-444-6443
    Find the chapter in your state: biausa.org/find-bia
    Link: biausa.org
  • Brain Injury Resource Center
    A non-profit clearinghouse founded and operated by brain injury activists.
    Link: www.headinjury.com
  • 10 Ways to Honor Brain Injury Awareness Month
    March is National Brain Injury Awareness Month – a time to recognize the growing prevalence of traumatic brain injuries and help make lives better for individuals who have sustained this kind of trauma.
    Source: Mental Help
    Link: mentalhelp.net/blogs/10-ways-to-honor-brain-injury-awareness-month
  • North Carolina Traumatic Brain Injury Program
    Information on waivers, resources, and other programs for individuals and families.
    Source: North Carolina Department of Health and Human Services
    Link: ncdhhs.gov/assistance/disability-services/traumatic-brain-injury
  • Brain Injury Association of North Carolina (BIANC) Family Help Lines
    Toll-Free Statewide: 800-377-1464
    Raleigh: 919-833-9634
    Traumatic Brain Injury (TBI) Program:
    Phone: 919-715-1294
    Email: TBIContact@dhhs.nc.gov
    Source: North Carolina Department of Health and Human Services
  • Parent Training and Information Center
    There are nearly 100 Parent Training and Information Centers (PTIs) and Community Parent Resource Centers (CPRCs) in the US and its territories.
    Source: Statewide Parent Advocacy Network (SPAN)
    Link: parentcenterhub.org/find-your-center/

Developmental Disability and Self-Advocacy Resources

Resources to Start and Develop a Small Business

Accessible and Inclusive Communities Resources

  • Project Civic Access
    This program is a wide-ranging effort to ensure that counties, cities, towns, and villages comply with the ADA by eliminating physical and communication barriers that prevent people with disabilities from participating fully in community life.
    Source: U.S. Department of Justice (DOJ)
    Link: ada.gov/civicac.htm
  • Final Rule in ADA Title III Requires Movie Theaters and Cinemas to Provide Closed Captioning
    Source: 3Play Media
    Link: 3playmedia.com/2019/02/08/final-rule-in-ada-title-iii-requires-movie-theaters-cinemas-to-provide-closed-captioning
  • Ticketing Fact Sheet
    Source: ADA National Network (ADANN)
    Link: adata.org/factsheet/ticketing
  • ADA and Small Business Fact Sheet
    Source: ADA National Network (ADANN)
    Link: adata.org/factsheet/ada-and-small-business
  • Customer Service for Business Fact Sheet
    Source: ADA National Network (ADANN)
    Link: adata.org/factsheet/customer-service-business
  • ADA Live Episode 10 Resources: Beach Access
    Source: Southeast ADA Center
    Link: adalive.org/episode10_resources
    Link: adalive.org/episode10
  • Why Accessibility Matters
    Source: BrailleWorks
    Link: brailleworks.com/accessibility-matters
  • America Walks
    Source: America Walks
    Link: americawalks.org
    Helps communities create safe, accessible, and enjoyable walking conditions for all. Provides strategy support, training and technical assistance to statewide, regional, and local organizations.
  • Every Body Walk! Collaborative
    Source: America Walks
    Link: americawalks.org/partner-directory/everybody-walk-collaborative-2
    National initiative to promote safe, accessible and inclusive places to walk.
  • Every Ride Counts Campaign Promotes Local Transportation
    Promotes the availability and accessibility of transportation options for older adults, people with disabilities and caregivers in communities around the country. Campaign resources include sharable advertising materials, videos, social media, webinars, and more.
    Source: National Aging and Disability Transportation Center (NADTC)
    Link: nadtc.org/everyridecounts
  • Easterseals Project Action Consulting
    Provides customized training solutions and technical expertise on the Americans with Disabilities Act and accessible transportation for transportation providers, human service agencies, states, regional agencies, tribal nations, and communities with the goal of working together to build accessible communities for all.
    Source: Easterseals
    Link: projectaction.com


The contents of this website are developed by the Burton Blatt Institute (BBI) at Syracuse University, with funding from the Southeast ADA Center under NIDILRR Grant Number #90DP0090-01-00 from the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR), a Center within the Administration for Community Living (ACL), U.S. Department of Health and Human Services (HHS). The Southeast ADA Center is a project of the Burton Blatt Institute at Syracuse University. The contents do not necessarily represent the policy of NIDILRR, ACL, HHS, and you should not assume endorsement by the Federal Government. 

The information, materials, and/or technical assistance provided by the Southeast ADA Center are intended solely as informal guidance on the Americans with Disabilities Act (ADA), and are neither a determination of your legal rights or responsibilities under ADA, nor binding on any agency with enforcement responsibility under the ADA. The Southeast ADA Center does not warrant the accuracy of any information contained herein. Furthermore, in order to effectively provide technical assistance to all individuals and entities covered by the ADA, NIDILRR requires the Southeast ADA Center to assure confidentiality of communications between those covered and the Center. Any links to non-Southeast ADA Center information are provided as a courtesy, and are neither intended to, nor do they constitute, an endorsement of the linked materials or its accessibility.

NIDILRR is not responsible for enforcement of the ADA. For more information or assistance, please contact the Southeast ADA Center via its web site at ADAsoutheast.org or by calling 1-800-949-4232 (voice) or 404-541-9001 (voice). 

Contact For More Information or Assistance:

Southeast ADA Center
Email: ADAsoutheast@law.syr.edu
Phone: 404-541-9001